Why You Shouldn’t See an Endocrinologist for Your Thyroid

You Don’t Want an Endocrinologist To Treat Your Thyroid (5 Reasons)

A Specialist is not as Special as you Think

Tell me if this sounds familiar:

You’ve been diagnosed with low thyroid or hypothyroidism by your current doctor because you started to experience fatigue, weight gain, hair loss, and maybe even some depression or anxiety. 

Your doctor put you on a medication like levothyroxine or Synthroid to treat your low thyroid but you’ve been struggling to get your dose right. 

Despite taking thyroid medication you still aren’t feeling any better and in fact, you may actually be slowly getting worse over the course of several years (the average is 5 to 10). 

Because you simply aren’t getting better you’ve started to do some research on your own and you’ve found some interesting information that you think could be the reason you aren’t feeling better. 

You’ve learned that not all patients do well on T4-only thyroid medications and you’ve found that your lab tests must be optimal in order for you to feel better. 

These things make perfect sense to you and you want to give them a try. 

You go to your general practitioner who doesn’t feel comfortable with this type of approach so he/she recommends that you go to an endocrinologist. 

You’re excited because you finally think you’ll get on the treatment and therapies that you need to finally start feeling better! 

Is going to a thyroid specialist (otherwise known as an endocrinologist) the solution to your problem? 

Unfortunately, there’s a slim chance that this will happen (in fact, there’s about a 99% chance that your endocrinologist won’t be of much help at all). 

And this brings me to the main point of this article:

A thyroid specialist is not as special as you might think. 

You are probably led to believe that they have some insider knowledge that general practitioners and family practice doctors don’t have but you’d be dead wrong. 

I can sum up how endocrinologists look at thyroid management in a few sentences:

  • They look to see if your TSH is high
  • If it’s high they give you T4 medication like levothyroxine or Synthroid until it lowers to a “normal” level. 
  • They don’t check for any other thyroid labs, they don’t care about thyroid antibodies or the diagnosis of Hashimoto’s, they don’t differentiate between optimal or normal, and they aren’t interested in using other thyroid medications aside from levothyroxine and Synthroid. 

If this sounds familiar it’s because it’s the exact same approach that general practitioners take. 

And it’s basically the complete opposite of the approach that I recommend taking and the reason I have hundreds of articles on the topic

And, for those who aren’t aware, an endocrinologist is the name of a doctor who specializes in treating the endocrine system which is another name for the hormone system. 

But that is actually quite misleading. 

While their name implies that they focus on the endocrine system, most endocrinologists end up treating only hypothyroidism and diabetes, and a few rare diseases here and there. 

For instance, endocrinologists don’t really focus on treating people with sex hormone imbalances or using birth control pills and they aren’t the right doctor to treat conditions like low testosterone even though both of these conditions are hormone imbalances. 

Despite the fact that they treat patients with diabetes and thyroid diseases, I would argue that they are not the right type of doctor for that job. 

They tend to look at people who have hormone imbalances as all the same, meaning they all need the same treatment. 

But hormone imbalances are different for each individual and this sort of cookie-cutter approach to hormone management does not work at all. 

And this is part of the reason why so many patients who have hormone imbalances continue to suffer despite going to a “specialist”. 


Foods to Avoid if you Have Thyroid Problems:

I’ve found that these 10 foods cause the most problems for thyroid patients. Learn which foods you should avoid if you have thyroid disease of any type.


The Complete List of Thyroid Lab tests:

The list includes optimal ranges, normal ranges, and the complete list of tests you need to diagnose and manage thyroid disease correctly!


5 Reasons to Avoid an Endo for Managing your Thyroid

This is the type of information which is should be used by people who are new to thyroid management but they aren’t likely to believe it yet because they haven’t gone through the thyroid song and dance with their doctor. 

So, unfortunately, the people most likely to agree with this are those who have already found that their endocrinologist is largely unhelpful.

But, if you by chance are new to managing your thyroid and you want to skip out on 5-10 years of hardship and continued symptoms and anger and frustration in trying to get your doctor to listen to you then you should pay attention. 

Because I’m not kidding when I say this could help save you those years. 

And, if you are someone who already knows what I’m talking about and has been through this please leave a comment below to help your fellow thyroid patients! 

With this in mind, let me share 5 reasons why an endocrinologist isn’t likely to be of much help to you in managing your thyroid…

#1. They won’t order the right tests. 

The first reason is that endocrinologists don’t believe in the necessity of advanced thyroid lab testing. 

At most, your endocrinologist is likely to order what is called a TSH with reflex to free T4. 

This particular lab test looks at your TSH and will only look at your free T4 if the TSH is abnormal. 

If the TSH comes back in the normal range then a free T4 will not be ordered. 

And I’m not even sure why they would look at your free T4 anyway because it’s not like the value of that lab test will influence their treatment decision. 

Because their treatment for hypothyroidism includes levothyroxine, levothyroxine, and some more levothyroxine on the side. 

An endocrinologist will likely scoff at you if you suggest that you need any of the following thyroid lab tests:

You might hear that they are not accurate or not helpful. 

But what cracks me up about comments like these is why would the lab tests exist if not to provide more information?

Furthermore, the primary reason they don’t want to order them is not that they aren’t helpful but because they simply don’t care about the result. 

Getting an abnormal free T3 or total T3 or reverse T3 isn’t going to change their treatment recommendation of levothyroxine, levothyroxine, and some more levothyroxine. 

This is unfortunate because these lab tests help you understand whether or not your T4 medication is working, how well your body is converting T4 to T3, and other important bits of information which can help you feel better. 

All backed by science, by the way. 

#2. They all treat the same. 

The next thing you should understand is that all endocrinologists will treat and look at you the exact same way. 

I shouldn’t say all because there are a handful of endocrinologists that don’t do this but roughly 98 to 99% of all endocrinologists do fall into this category. 

Your endocrinologist will only be concerned about your TSH and they will recommend the use of levothyroxine 99% of the time. 

It doesn’t matter what lab tests you request, what those results come back as if you can get them to order them, or how bad you are feeling while taking levothyroxine or Synthroid. 

If your TSH is fine then YOU are fine (at least according to them). 

And this sort of mentality exists among virtually all endocrinologists. 


Because this is how they are taught. 

join 80000 thyroid patients

In fact, this is how all doctors are taught including family practice doctors and general practitioners. 

I know because this is exactly how I was taught. 

As an internal medicine resident, I would occasionally ask about other thyroid medications such as natural desiccated thyroid only to be scolded for thinking about using unreliable pig thyroid. 

Your endocrinologist is not interested in changing how they view thyroid management just because you are not feeling well on your thyroid medication, unfortunately. 

#3. Endocrinologists don’t necessarily know more than your PCP or Family Doctor

This one can be a bit difficult for some people to understand. 

It would make logical sense at the outset that a specialist would know more than a general practitioner about a certain condition. 

Surely if that specialist treats the same type of patients day in and day out they must know something that other doctors who don’t have that kind of exposure don’t. 

You would think so but you would be wrong 99% of the time. 

To an endocrinologist, the management of hypothyroidism is already a solved issue. 

As far as they are concerned persistent symptoms of hypothyroidism when taking thyroid medication MUST be from some other cause. 

They don’t even recognize the thyroid as a problem if you are taking T4 medication and if your TSH is normal. 

You should understand this because what this means is that it doesn’t matter how much you complain or tell them about your symptoms, it won’t make a difference to them. 

And we see this is true based on the fact that surveys show that hypothyroid patients complain about the same symptoms for more than 10+ years to their doctors without seeing any improvement. 

Most patients who go down this path end up on anti-depressants as a treatment instead of changes to their thyroid medication! 

By the way, I’m not saying that all specialists don’t know more than general practitioners because that simply isn’t true. 

In fact, most specialists (outside of endocrinologists) do know more than family practice doctors about certain conditions but this just doesn’t hold true for endocrinologists. 

#4. They tend to be more set in their ways than general practitioners. 

You might think that being a specialist is a good thing because perhaps the specialist is more likely and willing to listen to new ideas or new therapies, right?

Unfortunately, you’d be dead wrong most of the time. 

Endocrinologists by virtue of the fact that they treat thyroid patients day in and day out tend to be LESS likely to listen to any alternative treatment paradigm. 

They are already set in their ways and think that they know the answer. 

This is further reinforced by living in an echo chamber where they go to conferences that spout the same information when they read articles and journals which support the same medications, and so on. 

They are unlikely to ever hear about alternatives to thyroid management outside of the traditional TSH + levothyroxine thyroid model and when they do they automatically reject it. 

Believe it or not, your family practice doctor or general practitioner is much more likely to help you out with new therapies when compared to your endocrinologist. 

#5. It will be very difficult or almost impossible for you to convince your endo to change how they treat the thyroid. 

The last one is kind of an extension of #4. 

Many thyroid patients read information like this and they think that they can take this information to their doctor and they will be both happy to learn something new and eager to implement the new changes. 

Again, unfortunately, you couldn’t be farther from the truth. 

Listen to this story:

When I was in my first year of practice out of residency I had some amazing success with a husband and a wife who were among my first-ever patients. 

Collectively they lost some 50+ pounds, had more energy than they could remember, got off of some of their prescription medications for blood pressure and cholesterol, and were overall doing fantastic. 

They were obviously excited by these changes and they went to their doctor to tell him about me and my therapies. 

Instead of the doctor being happy about their success, he was upset that they went to see me and questioned my credentials and methods. 

This is despite the fact that so much good had been done in their lives. 

I learned pretty quickly that most doctors are really not interested in learning more or trying new things and they even feel threatened when they find someone who has more success than they do. 

This isn’t a universal thing but it absolutely does exist and it is more prominent than you would think. 

The moral of the story is that doctors are not likely to change what they are doing even in the face of amazing success and positive results from others. 

It’s optimistic to think that they will change their mind and try something new and I do think it’s worth a shot but don’t be surprised when they are not interested at all. 

If you find that this happens to you then it’s often best to just seek out a new physician who is more willing to work with you and who will listen to you. 

Who to see instead

So, what should you do if you can’t get results from an endocrinologist?

What kind of doctor should you go see, which doctors will actually listen to you?

Here’s how I would approach this problem:

First, you should always start with someone who takes insurance and who is local. 

Go see your family practice doctor or your local endocrinologist and talk to them. 

Test the waters to see if they are open to new therapies, trying new medications, and ordering the more advanced thyroid lab panel

If you don’t find success or if they are unwilling to work with you, don’t be discouraged. 

Just move on and try to find a new doctor. 

You will probably find that some general practitioners (maybe 5% or so) are willing to work with you. 

The likelihood that your endocrinologist is willing to work with you on these things is probably closer to 1-2%. 

If this approach fails then you will probably need to seek someone with a different set of skills and training outside of the conventional medical system. 

I find that doctors with training in integrative medicine, and anti-aging medicine, and doctors who specialize in bio-identical hormone treatment tend to work best. 

The only downside to these doctors is that they typically don’t accept insurance and they may not be local to you depending on where you live. 

But the extra price to pay for the right treatment will be worth it in the long run, at least in my opinion. 

I get asked this question a lot so I will address it here:

I do not have any recommendations for any doctors that I can give you. 

I wish I did but all of the information that I have here is self-taught which means that in order for someone to understand it they must do the leg work on their own. 

There are without a doubt doctors out there like this, I just don’t personally know them. 

Final Thoughts

When it comes to thyroid management, you would probably be surprised to learn that endocrinologists may not be your best option. 

This kind of talk is considered heresy, especially among conventionally trained physicians and health providers but I honestly believe it to be true – at least for now. 

I don’t think that endocrinologists are malicious or want to keep thyroid patients from feeling better in any way. 

Instead, they are just the victims of current thyroid management dogma and, from their perspective, see no reason to change. 

In fact, it seems to be quite the opposite. 

It’s not uncommon for thyroid patients to become more educated, ask questions, and seek different therapies and tests. 

In the face of this new wave of information, most endocrinologists are doubling down on the current treatment paradigm. 

I’ve even seen a few new studies which refer to the education of thyroid patients as a big problem. 

What a crazy world we live in. 

My hope is that this changes in the coming 5-10 years when the burden of new clinical studies which support the sort of thyroid management that I talk about here (1) becomes so heavy that it will be impossible to ignore. 

But, for now, it seems like thyroid patients have an uphill battle to fight. 

Now I want to hear from you:

Do you feel that your current doctor is willing to listen and work with you?

Have you had success in getting treated by a family practice doctor over an endocrinologist?

Have you had success in getting treated by an endocrinologist?

If not, who is currently treating you?

If yes, share who you are seeing and where they practice below!

Leave your comments and questions below! 


should you see an endocrinologist for your thyroid?

picture of westin childs D.O. standing

About Dr. Westin Childs

Hey! I'm Westin Childs D.O. (former Osteopathic Physician). I don't practice medicine anymore and instead specialize in helping people like YOU who have thyroid problems, hormone imbalances, and weight loss resistance. I love to write and share what I've learned over the years. I also happen to formulate the best supplements on the market (well, at least in my opinion!) and I'm proud to say that over 80,000+ people have used them over the last 7 years. You can read more about my own personal health journey and why I am so passionate about what I do.

P.S. Here are 4 ways you can get more help right now:

#1. Get my free thyroid downloads, resources, and PDFs here.

#2. Need better symptom control? Check out my thyroid supplements.

#3. Sign up to receive 20% off your first order.

#4. Follow me on Youtube, Facebook, TikTok, and Instagram for up-to-date thyroid tips, tricks, videos, and more.

102 thoughts on “You Don’t Want an Endocrinologist To Treat Your Thyroid (5 Reasons)”

  1. I just saw my endo last week prior to the appointment I had a blood test which showed my tsh 6.0 and t4 normal. He is treating me for Secondary Adrenal Insufficiency which he prescribed 15mg hydrocortisone and since taking these pills OI have gained water weight big time which was the reason why I wanted to see him. The endo said he doesn’t see a thyroid problem but he put me on a low dose of levothyroxine he said he should help me with my weight.
    I didn’t pick up the prescription as of yet.

    • Oh dear, that hydrocortisone does cause weight gain. I got off it only too late. Will never do THAT again! And yep, those endos don’t do you any good. See my comment below.

    • Hi Dr. Westin,
      I have been on thyroid meds since I was 20 .I am now 58 I was diagnosed with Hashimotos in my 30s by a hormone specialist. I am getting worse and missing alot of work. My Dr. does not listen and I go from increase med then decrease med. I have been looking for another Dr. They all are treating me just like you said. I am very frustrated and depressed. When I have a very bad day,my head pounds, I have chills so badI shake and then sweating at the same time. I am so exhausted and hurt so bad. I have gone to bed at times because I cannot function and have slept 24 hrs or more. I am so tired of living this way there are days ,I no longer want to live. Just praying something will be positive soon. I have tried many supplements and have not had any luck. Not saying yours will not work just spent alot of money. I have not read many of your articles do to work .I come home and go to bed or if I am in a flare up. This morning I am feeling better and was thinking about seeing an endocrinologist when your article caught my attention. Keeping my fingers crossed I will find someone in my area that will help .

    • You are spot on with my experience with endos. She was only going to do TSH and I asked her to add antibody count….. and she was actually rude about it saying those labs mean nothing. Only need TSH. Good grief, my primary doc can do that. I am going back to my primary. This was my second endo. The first was more informed(she actually has Hashimoto) but has since retired.

    • Hi Jeanne…I also decided to go to an endocrinologist…he also prescribed levothyroxine …I had been taking armour thyroid…so I took it…had a terrible experience..I thought I was having heart attack. My pulse rate seemed to increased but more importantly my body had the shakes. It was terrible. I tried calling…didn’t get the doctorlllgot his assistant and …well they still wanted me to take it…I decided to remain on my armour thyroid. PS I NEVER went back to him. My armour thyroid was prescribed by an internist who believed in working with drugs that were as close to natural as possible. Unfortunately that doctor has passed and now I live in Florida. Although I love my internist here, he seems to be reticent to really test my thyroid, so I’m still looking. Hope this helps. BTW I threw out the levothyroxine! My Best, Pam

  2. I’ve seen two endos now, I did blood tests on my own prior to the visit using your guidelines. They looked at my endless list of symptoms, looked at anti bodies etc. The Dr who I saw yesterday said that high antibodies are not important????? He told me to stop T4 and use T3. All my blood work points to Hashimotos as explained in your diagram but I have not been officially diagnosed. I have changed my diet, practised mindfulness, cut coffee, gluten, soy, canola etc . Only through my own knowledge. The Dr yesterday didn’t even ask me about my diet. He just said my thyroid was shrinking. I am fed up with it to be honest. Struggling to find anyone who will listen. My younger sister had her thyroid removed last year from cancer

    • Hi Naomi,

      Unfortunately, that’s fairly common among endocrinologists. They claim to know more than they really do thus the reason for this article. I have information on how to manage your thyroid with medications, supplements, etc. on my blog and videos.

      • Thanks do much. I think I am going to take my journey in to my own hands. I know I don’t have cancer or anything more sinister. Instead of wasting money on Drs I could use the money to get the best supplements etc with your extremely good guidance

    • Hello my name is Ashley. I am 38 and was on a large dose of methimazole for hyperthyroidism for over 15 years. I got bloodwork done and my TSH was at 164 once and 127, after going to the endocrinologist i had the radiation treatment and he keeps upping the dose of my levothyroxine even though ive been cold, shaky, on my period for a month straight, lost 30 pounds in two months, am vomiting and feel full of gas. I also feel like i can not sleep whatsoever and am mentally exhausted but the vomiting and loosing 30 pounds i feel like im on speed or something all day and all night its like my body can never relax. I have literally had more bloodwork and he cant make sense of it now i am desperate and dont trust him anymore i feel like he isnt listening and just wants me to keep doing this treatment thats killing me. PLEASE HELP THANK YOU GOD BLESS

  3. I gave up on finding an endo. They all do the same bad, outdated protocols. They’re super closed minded, too. So my Medicare coverage does me no good for thyroid–Medicare won’t pay for the progressive docs and meds that really work. It’s a shame our medical system is so dismally behind the times. So I’m still paying cash for good alternative, progressive thyroid doctors, but it’s well worth it — they know what they’re doing and it works!

    • I am like you. I am currently working with a progressive institute after going through a couple of endos. Endos are a waste of time for thyroid problems (I have hashimoto’s, I had a thyroids storm with Afib and was in
      ICU for 5 days). I am now with DaSilva institute in Sarasota FL and I am doing very well. My hormones were severely unbalanced and I had other problems. I am on HRT and supplements and like you say: these people do things that work! I have only been with them for about 6 weeks and there is already a big improvement. But……it’s expensive and insurances do not pay.

  4. There are good progressive, integrative MD’s out there. I’ve always found them by asking around and searching the web. They’re the only way to go if you want to feel great.

  5. I would like to hear more about hyperthyroidism (Graves’ disease)as this is my problem.
    I’m on carbimazole 5 mg and the weight gain is horrible.

    • I just had my most recent blood tests. YAH dropped from 4.1(after reaching a high just over 15), to 2.82. My antibodies had initially tested at 858. Was told I was very positive for Hashimoto’s disease. No mention of the need or direction for changing my diet. I researched, cleared out all related foods associated with Hashimoto’s. Began consulting with a registered dietician, nutritionist. My antibodies now show 472. No one seems to want to examine me for sources of the antibodies. Allergies? Environment? Stress?. I sought to get a reverse T3. Endocrinologist did not request/approve. I have dropped 21 lbs. Not considered overweight… Where should I turn for information/assistance next

    • I also have Graves Disease and my Endo isn’t doing much to help! I did my research and got the exact response as the article said I would!!

  6. I’m in Ardmore, Ok. My Dr. is Dr. Lauren Southward. She’s willing to take recommendations from my compounding Pharmacist, Russell Hobbs.

    I’m currently using natural supplements to try to help with conversion. This was recommended by Russell as a 1st line of treatment. If this doesn’t work, I’ll turn to Compounded Hormone. I already use Bioidentical Estrogens, Progesterone (capsules) and, Testosterone (cream).

    I also did a phone consult with Jenny Gallager in Omaha, Nebraska. She’s a NP who prescribes NDPH.

    Hope this helps someone.

  7. First, I want to say thank you for opening my eyes.
    It has been about 2 years now I have been in a T3/T4 medication and feel 100% better.

    I was diagnosed with hypothyroidism when I was 15 years old. At that point they put me on Synthroid. After about 3 years my primary said I should go to an endocrinologist. So like any parent, my mother found an endocrinologist and took me to him. Through the years of seeing the endocrinologist I had told him all of my symptoms whenever I went to see him. Fatigue, heart palpitations, low sex drive (of course that is when I was married) and so many more. At one point I questioned him, “are you going to test any of my other thyroid fictions?” He replied “no” just your TSH. He was the endocrinologist, so I never questioned anything else. It was not until my last appointment with him when I started doing my own research. I had put on some weight and was very discouraged with myself that I could not take it off. At my appointment, I had mentioned this to him. He tapped me on my back, and said “bad genes”. What!?!?! I was so upset when I left his office, I took matters into my own hands. I start doing massive amounts of research on hypothyroidism. I found your blog and others and became obsessed. At that point, it had been 25 years that I felt like blah every day. I thought that’s what normal was. I did my research, and went to my primary with everything I had found. I begged her to prescribe a t3/t4 medication. She was apprehensive at first. I told her I would sign something saying it was all on me. She gave it a chance. I am so very grateful she did. Because literally in 3 days of being on the t3/t4, I felt 100% better. And to top it all off I lost 15 pounds.

    Thank you again for these tidbits of information you share with us. I hope you inspire more people to do their own research and push to get themselves feeling great!! Thank you from the bottom of my heart!


  8. I found a functional medicine practitioner who specializes in reversing your thyroid naturally! My endo dr is adamant that meds is the only solution so I’m basically seeing him still while working on reversing the program. It’s definitely hard to find a doctor who thinks there is an alternative to meds.

  9. I found a local doctor in my small town who practices “mainstream” medicine during the day and functional medicine in her “spare time” (but doesn’t take insurance). I have a Zoom meeting with her about 3 times a year for an hour each time (definitely of more value than the 5 minutes with a mainstream doctor!), communicate via email frequently and she also provides all my lab orders. She is amazing! She had me fill out a large stack of forms before my first in-person visit which were time-consuming but very thorough and, as she ordered the right labs immediately, my Hashimotos was pinpoint quickly.
    I’ve started a protocol written about by Dr. Wentz, who is a pharmacist that also has it and figured out how to REVERSE it! The protocol involves primarily dietary modifications, some supplements, and getting sufficient rest; the details are in her book “Hashimoto’s Protocol” and are not hard to do. I’m feeling so much better! My input would be to find a functional (or integrative) physician, even if that person is only available online. We all now know how to do Zoom meetings and as Dr. Childs says, it’s worth it to find the right doctor!

  10. Hi..interesting read! I was diagnosed (by a Family Med DR) with sub-clinical hypothyroid in 2015 and started treatment with Levo..I moved and started seeing a NP who specialized in integrated medicine..she tested for antibodies and the results came back greater than 1000. She prescribed low dose Naltrexone and my next antibodies test results a year later were 565..at least down by half! I moved again and took this prescription to a new NP who was just starting to dive in to naturopathic medicine..he’s kept me on the naltrexone(I test tomorrow for a full thyroid panel including antibodies)and, when I asked about 16 months ago, he prescribed Armour Thyroid..I really have found nurse practitioners listen and try to learn from each patient. Do I wish I had a doctor who was bringing treatments to me, instead of the other way around? Yes, but nobody cares about how I feel more than I do..so I’m happy I’ve found someone willing to listen.

  11. The past two times, my TSH has been normal, but my T4 has been elevated. My endo blames it on the lab or says that my TSH is normal so he doesnt want to change anything. Please help

  12. Hello sue

    I can really feel for you, well what you going through and what you went through.

    about 10 -15 years ago,

    I had some heart trouble I had to have a stent put in.

    No big deal, not until my heart started fluttering, which it had done for 35 years.

    my cardiologist, put me on Amiodarone 200mg. The very worst medicine that can be given

    Who are person with thyroid problem.

    I got a severe ammonia, hospitalized in ICU for 11 days.

    prior to that a few months before the cardiologist took me off the Amiodarone 200mg.

    but it was too late.

    after my hospitalization My heartbeat was 155 per second.

    Me not knowing any better or image suspecting the side effect of Amiodarone 200mg.

    I resumed taking my prescribed medication.

    Oh yes the backtrack a little bit; I gave him all my symptoms there are in the book about Hyperthyroidism. Put me on a controlled substance.

    It relieved the fatigue some what. I was taking three 20 milligrams of methana per day.

    As my body demanded more, as what happens with a controlled substance, I started 4 every day.

    Just continued to 5, 6, 7, 8, well I used up my month supply.

    and the rest of the time I was in total misery.

    and the doctor took me off it , saying that I could be becoming an addict.

    Which are you already was. not now,

    Like the other doctor says; medical profession in the United States sucks.

    My wife has to use a roller drive. get around, what’s up another doctors decision

    You prescribe a medication That made her a cripple.

    I can go on and on and on

    I will not get any better. With doing it myself
    Read & studying the does help.
    Sometimes being your own MD. WORKS

    thank you for listening
    I all hope that you can do better then what you doing with the regular medical profession in the US

    JOHN R.

  13. I love my endocrinologist. He does actually listen and is willing to try whatever he can to get me feeling better. I don’t have a thyroid, I was born with only half and it had to be removed a few years ago because of a goiter. I started seeing my endocrinologist shortly after my otolaryngologist put me on levothyroxine. Within a couple of visits, he ordered the advanced thyroid panel and even though my TSH looked good, he suggested that I may have been having a hard time converting my T4 to T3 and prescribed Armour Thyroid. I have been feeling better ever since until recently when my pharmacy switched me to NP Thyroid at the urging of my insurance company. I have already been told by my endocrinologist that if my numbers do not improve after a couple of weeks on the NP Thyroid he will contact my insurance company and have me placed back on Armour. He’s a really good doctor and I would highly recommend him to anyone who is looking for a endocrinologist in Northeast Ohio.

  14. About 10 years ago I was totally frustrated with an endocrinologist. I moved to a new town and saw an open-minded family medicine MD who started me on a T4/T3 hormone. Then I saw another doctor for a different problem who is certified in both sports medicine and family medicine and is in charge of a wellness center. Her nurse told me she really helped her with her thyroid problems so I talked to her about my journey. She runs the necessary tests and I basically go to her now for just about everything. I still like the other doctor who is officially my PCP and does my annual Medicare wellness exam. I feel fortunate to have relationships with two good doctors, and I feel great!

  15. I started seeing Dr. Kelly Bouldin of Ft. Worth, Texas about a year ago. I am seeing great improvements! I didn’t see any doctors for a few years prior to that. I saw a family doctor a couple of years before that but wasn’t getting more extensive care. And I saw an endocrinologist for about 5 years before that. My cortisol was up. My levothyroxine doses kept going up. And I wasn’t getting better. It can be devastating to stop treatment but I was so frustrated. My thyroid did swell up a but. I could feel it. I was diagnosed with Hashimoto’s late last year. I think i had it while I saw the endocrinologist but was never diagnosed. I wish I had had this article 10-15 years ago. I would be in a much better place now. My health us improving under Dr. Bouldin’s care. I am so glad I found her program. Its affordable! The endocrinologist was over $400 every office visit 10 years or so ago.

  16. I swear to GOD, i changed more than ten endos to treat my thyroid. What they kill me is that they believe papers more than the patients feeling. Last year i was searching for help. Till i found you! And watching almost all of your blocks and videos on hypothyroid. Now iam on my treatment without any endo support and suggestions. I feel much comfortable than before. At least im convinced there is someone could support you out of this crash. Thank you so much Dr Westin.

  17. I broke up with my endocrinologist last week! I was diagnosed with hypothyroidism and Hashimoto’s disease last fall-my endocrinologist prescribed me the lowest dose of levothyroxine available and I’ve been struggling. Each time we met and I told her how I was feeling she ran other tests (nothing to do with the thyroid) or sent me to other departments for assessments. It ended up being very expensive with no new diagnosis to pin my ongoing symptoms on. Last week I had my first appointment with an Internal Medicine doctor who specializes in thyroid issues. I came away with a more appropriate dose of Levothyroxine and an additional Rx for my T3. He also has a plan in place for optimizing my levels. I’m thankful I did not struggle for 5-10 years before getting fed up and seeking a different provider.

  18. Hey everyone,
    I live on a small island in the UK and the only Person who can prescribe T3 here is an endo, i was doing well with one who was interested in the T4/T3 levels (I’m T3 only) but this year I get a different endo over a phone consultation each time and they are only interested in TSH, I asked about LDN and it’s not prescribed here apparently. I haven’t had an antibody test for years.
    So just going round in circles really! If I had spare money I’d be keen to look into online consultation with someone out there online who can prescribe and recommend different things, can anyone recommend someone who can do this so when I’ve paid for my daughters braces I can give it a try? Do you do this Dr Westin?

  19. Hi, I’ve just been reading through your comments. I am waiting to see an endocrinologist, I have had problems 4 months pp with my son, (ppt) went hyper then hypo and prescribed levothyroxine straight away,my tsh level went back quickly to 1.82 and it’s now 2.46, my antibodies are raised slightly but my all other levels are in a good range. I asked my doctor is she could lower my dose and want to see if I can come off eventually, but after reading this I’m nervous about going.

  20. 100% agree with you. My journey has been over 15 years and it has been with your help through your emails, and my integrative medical practitioner who was willing to listen to me and prescribe based on what I showed him from this website, that I finally seem to have my levels right and have lost the weight I gained right after my thyroidectomy. You’re amazing Dr Childs! Thank you and much love from South Africa.

  21. This is exactly my experience. I was sneered at by an endocrinologist for saying I thought I had a thyroid issue, and made to feel like a criminal by my family doctor when I eventually found a real thyroid expert who took one look at me and diagnosed me pretty much on the spot. My doctor refused to take on the prescription so I changed doctors until I found one who would. But I have never found anyone in the UK who will prescribe NDT.

  22. I had thyroidectomy in May 2018 after which the endocrinologist put me on Levothyroxine when my lab tests revealed high hormonal levels. I was on the drug for 9 months with a two months break in between as I was not able to see the doctor on the appointed date for the review. According to the lab test carried out during my last visit to the endocrinologist in September 2019, the results were good and the drug was discontinued. I am waiting to see the endocrinologist in September 2020. However, I have been experiencing a lot of symptoms that make me scared and worried and the symptoms include: Pain in my throat and upper neck, pain in the my ears especially the right ear and gum ache. Sometimes I feel fatigue and some slight head ache. I am not able to see the endocrinologist at the moment as I have been cut off in my work place in a different country.
    I need help on what could be the cause of these symptoms



  23. Hello Dr. Childs,

    This article describes what I went through with endocrinologists spot on. I had papillary thyroid cancer & felt horrible with the help of 3 of the “best” endocrinologists in my area for six and a half years before getting fed up & dropping an endocrinologist for my total wellness doctor who has been nothing short of amazing for me. He ran the right tests & corrected all of my hormone imbalances & vitamin deficiencies. As a result I am now finally after almost 7 and a half years living my best life again. This article really spoke to me & was 1000% spot on for my experience. I couldn’t have written it better myself. Thank you for being brave enough to shed the light on how horribly wrong most endocrinologists are when treating these thyroid conditions. Something definitely needs to be changed so people do not continue to suffer for no good reason. God Bless You!

  24. Helen Harbord
    Where in the UK did you find your thyroid expert? Is it under the NHS? As my G.P. Is trying to stop my T3 saying it is too expensive for the NHS!!
    I would be grateful for a reply.
    Thank you

  25. Thyroid issues run in my family. I’ve been treated before, but because we were military, the military dr’s don’t always really care or listen well. We retired and I thought things would be better. For the last 9-10 years, I have been on the SAME medicine and SAME amount 0.025mg. I have lost so much hair, I have issues going to the bathroom, I’m CANNOT lose weight, I’ve actually gained even though I workout. I had gotten the flu and was really sick and didn’t even lose a pound. Certain foods make me bloat as if I’m 4 months pregnant. I hardly eat anymore. I’m so incredibly frustrated. Everytime I get my lab results, she says they are normal. If I am so normal, why do I feel like crap?

  26. I struggled for years with low energy, weight gain, low libido, brain fog and other thyroid symptoms. My doctor did the standard TSH tests which came back in the low normal range. I found a female pharmacist who specialized in helping women with hormone problems and she helped me immensely. I had saliva testing done which more accurately pinpointed my thyroid, adrenal and cortisol imbalances and gave me a direction for treatment. She recommended an integrative medicine specialist who prescribed Lyrothronine, Cytomel, and a compounded estrogen/progesterone cream. I also take supplements like selenium, vitamin D, vitamin, E, Vitamin C, and an adaptogen. I am 68 years old and feel great! I was able to convince my family doctor to keep prescribing these meds after the specialist retired, even though she is reluctant, but acknowledges that my quality of life is much improved. I recently was able to finally lose 13 lbs with my goal of 12 more. Many people have commented that I look much younger than 68 since I feel so much better. Thank you for all your great articles, I can go to my doctor with solid information to back up my requests.

  27. I have an endo who I am pleased with and have been a patient for over 17 years. She thoroughly listens to my symptoms and not bases my treatment on lab results. Hashimoto’s is an extreme and unique creature that must be treated properly. I have struggled with leveling my medication to fit ME. I am on combination therapy (Cytomel/Levoxyl) T3/T4. I suggest for those who cannot seem to function, or, who struggle with weight issues to ask your physician to try this. Once I get the proper dosage I’m good for quite awhile and then I fall off the cliff and have to readjust. It’s a constant battle for me as well as I’m sure LOTS of others. Finding the right doctor who is willing to treat “your symptoms” and not solely labs is who one needs to look for.

  28. “First, you should always start with someone who takes insurance and who is local. ” Spoken like someone who lives in a larger city where these providers actually exist. So very frustrating and discouraging for those of us who do not.

  29. Went to a few doctors years ago. Gave them all my symptoms. All those doctors recommended an endocrinologist. I did some research. I went to an endo. & told her I wanted specific tests. She did them all, but when all the numbers came back in the normal range (including TSH), and EXCEPT for TPO antibodies, which were very high, she told me I had Hashimotio’s and prescribed Levothyroxine. Later, she switched it to Synthroid, and then back to Levothyroxine again. She refused to up dosage or do any other treatments. I went off Levothyroxine and Synthroid, as they did not make any difference in my numbers. My numbers are still normal, except for TPO antibodies being anywhere from 161 to 226 or so. Still have weight gain, even on diets; hair loss, low libido, etc. I recently moved from Illinois to Cape Coral, Florida, and I am looking for a doctor who will work with me that takes insurance. If anyone knows of anyone down here, please let me know! Thanks!

  30. I gained 15 pounds within three months about five years ago (I usually never gain weight) and felt freezing cold all the time. I see an alternative medical practitioner who is an M.D. on occasion and went to see him. He immediately ordered tests for TSH, free T4 and free T3. All came back abnormal. In the meantime I read an entire book about hypothyroidism until I understood thyroid function really well (please be aware that the reference ranges that most doctors recognize as correct are off, so educate yourself), and one on Hashimoto’s Disease. I went back to my doctor and asked for a Reverse T3 test and a number of others. Turns out I don’t have Hashimoto’s, but I don’t convert T4 to T3 very well. After trying a number of medications we settled on compounded T3, nothing else. Working out the right dose took a few months but I eventually went completely back to normal, lost the weight, have had no issues with weight control since, don’t feel cold all the time, have tons of energy and generally feel great. I highly recommend that you do whatever you need to do to find an alternative practitioner if your own doctor is not willing to order all of these tests and work with you until you find the medication that is right for you. My alternative practitioner says, “the proof is in the pudding – the most important indicator of whether your medication works for you or not is how you feel on it.” That sounds spot on to me.

  31. Have had a different history. Was diagnosed hypothyroid and put on T4 about 1966 by a young general practitioner in Phx AZ. Moved to Europe but continued to visit the Phx Dr when back on business trips. After a few monthe the T4 wasn’t helping so my Phx Dr. added T3, when that was a very new idea. a couple of years later was put on T3 only, and found a European Dr. who was good with that. About 1993 my T3 labs started going high, and by 1998 my European Dr. took me off all thyroid supplement, unfortunately after I had developed AFib. In 2019 (back in the USA) I started to feel hypothyroid again so did my own research, read the book “The Thyroid Patient’s Manual” and got my GP to prescribe Armor thyroid at a minimum dosage. Had to persuade him to increase the dosage twice in a period of 6 months, then he changed his practice to focus on younger patients and I had to find a new doctor. Am now on my second one, have had to increase my dosage again myself, and have now been referred to an endo. Four years ago my wife showed signs of hypothyroidism and her TSH was ok clinically but slightly elevated by Integrative medicine standards, and her T4 was a bit low. It took me 6 months to get our then GP to test for T3 (it was quite low) and another 2 months to get a prescription. As soon as her T3 got back into the low end of the lab ref range our then Dr. would not renew the prescription, so I change. to the one that helped me and he renewed the prescription and then increased the T3 twice (from 5 ug/d to 15 ug/d, keeping the T4 flat at 50 ug/d. After we lost him, tne next doctors would not agree to any further increases, so I increased the dose on my own. Her T4 was below the lab ref range, and her T3 was at the top of the lab ref range. Finally our latest GP referred her to an endo and he doubled the T4 and reduced the T3 back to 10 ug/d. He did not order rT3 or any antibody tests, and he talks exactly as you describe above. Her T4 was centered in the ref range and her T3 was a bit below center at her last labs, but now she is showing hypo symptoms again. Having read this article, I am now very skeptical, but will give the endo another chance. BTW – we did try one “holistic” practitioner but he turned out to be a real dingbat and tested for a bunch of things that had nothing to do with thyroid or hormones, and recommended treatment that does not make sense. Are there good thyroid doctors that will consult remotely by computer. I am not hopeful of finding a good one locally.

  32. Hi Dr. Childs,
    After reading so very many comments from under treated thyroid patients, you must be exceedingly frustrated–and it shows in this blog! After reading so many of your articles I don’t remember reading such a strong statement as this. Bravo to you for finally posting these words!

    I am frustrated myself at how I am being treated by my endo specialist. Because I always have white coat syndrome (high HR and BP) when I come in, she is convinced that raising my medication will suddenly ‘flip’ me into hyperthyroidism–even though my current dose is very low and I show no hyperthyroid symptoms. I can’t help but wonder if she is deliberately under treating me just to shut up all my complaining about hypo symptoms.

    I often take my BP and HR at home and both are well within healthy limits–and the BP is often even low. I have noticed that doctors often don’t trust what patients say and must see it with their own eyes. In my case, they probably never will since I will be sitting in their office, experiencing white coat syndrome each time they take my readings.

    Very frustrating. Even though I am on Medicare I probably should try to scrape together the money to find a functional medical doctor although I worry that the experience could lead into thousands of extra dollars because I have so many other non-hormonal things wrong with me.

    Thanks for giving words of encouragement to seek treatment from more understanding doctors!

    • I go to obgyn Dr Bradley Axline in Flower Mound. He corrects hormone imbalances, weight issues, and thyroid problems. He will prescribe natural desiccated or T3 if you prefer and he’s been very patient and responsive to my thyroid probs. The good thing is that he does take insurance and is better than any GP or endo.

  33. Hello Dr. Westin. Have you heard of RedRiver Health and Wellness Center? If so what do you think of them? I believe they’re headquartered in Utah but have centers in Arizona, New Mexico, Nevada and Idaho. I’ve seen their adverts on TV and they appear to help with thyroid, autoimmune and adrenal issues that are perhaps above and beyond the typical endocrinologists.

  34. Hi again.
    Due to somewhat elevated T3 therapy both myself and my wife now have TSH at a vanishingly low level and the doctors believe that indicates hyperthyroidism, possibly dangerous. Does TSH have any meaning when one is on T3 therapy?

  35. Like I’ve said before, endos are worthless unless you have a goiter or nodules you need biopsied. They are lazy worthless Drs in the grand scheme of your treatment. pardon the harsh words but I’ve been to plenty of them….worthless

  36. I wasted 8 years seeing an Endocrinologist in Fredericksburg, Virginia (Dr. Zavadil). I consider him a quack. I never felt good under his care as he only prescribed T4 drugs (Synthroid). He prescribed a high dose of estrogen for hot flashed and not enough progesterone so that I developed endometrial hyperplasia which caused excessive bleeding even though I was past menopause. Even though I asked him to test for T3 which came back as insufficient, he refused to prescribe Cytomel. He knew nothing about balancing my hormones which to this day are still out of balance. So I stayed fatigued, gaining weight, depressed, irritable, and awful feeling. Of course, he wanted me to take antidepressants. I was on them for years and years and suffered memory loss as one of the side effects. Never again will I take an antidepressant. They are neural toxins for the brain. I fired him and had my internal doctor treat my thyroid. Another decade wasted by this doctor (Mohit Anand) who refused to prescribe Cytomel. I moved on to an integrative doctor who took insurance. She prescribed T3 and after a year started me on Low Dose Naltrexone to help with cell penetration. My complaint with that practice is that after 2 years, they still have not identified my thyroid problem. Am I hypothyroid, do I have autoimmune issues, thyroid resistance, or Hashimotos? They refused to give me blood tests to get to the source of my thyroid problems. What is wrong with these people? They will not identity the problem which means they cannot solve the problem. Instead, they want to treat my symptoms until I drop dead. I fired them too and am now awaiting another appointment with a Physician’s Assistant with Diabetes & Thyroid Associates in Fredericksburg, VA. I have no faith in any of these people, but what else can I do? It’s trial and error, hit or miss as decades pass by. The medical community has failed me and countless others. No wonder my adrenal glands are compromised due to the stress of trying to find a competent doctor who will identify the problem and solve the problem.

    • So the LDN did not increase cell penetration of the T3 as hoped?
      My rT3 is very high, so taking T3 did zilch. Even taking iron does zero for my very low ferritin levels. I finally found an iron absorbed by my system, with lactoferrin. Im not energetic by any means, but after a week or so of it, I can feel the difference. I take a bottle a couple times a yr as Im not testing my ferritin levels now-no practitioner who would do it. They only test hemoglobin/hematocrit, which is useless.

  37. The majority of Americans have no access to this cash system of care, as always, thruout history. The rich will get care, the masses will die, suffering first.
    Unless you have a great income, the percentage of your income needed to pay for care is way, way too high. And that’s sad that income and wisdom/education still are so disparate.

  38. Dr. Childs,
    This is Mari Trejo. I am not even want to remember the years of suffering, anger, and frustration besides feeling very depressed and high anxiety, etc. Medications for what they said I had: phobias all kind, mentally disordered, family problems, all I needed was to getting married, and more nonsense diagnosed issues. Many years of coming to think I was loosing my mind. All this uncertainty took me to the darkest place of my life, to the point that I could not walk, eat, sleep, etc. Better stop here. Now, I have a sense of what I have, still taking antidepressants, and anxiety medications, and, of course, Livothyroxine. Now, thanks to technology and to doctors like you, I am more informed of what I might have, and what I can tryout for my hypothyroidism and probably Hashimotos. Looking for a doctor that will want to deal with my issues, and that can bring some good health to my life before my years stop.
    I know I have to take tests of all my endless health issues, and right now I have to start by knowing if I have Hashimotos Hypothyroidism, after this, hopefully start getting some of your products.
    Appreciate your concern and your valuable information.

  39. No success with endos or PCP’s. Went to integrative and they are better. I would like to know how to loose the weight though. They have not helped me in that area. What tests do I need for that area of concern. I’m 66. Thanks, Dr Westin

  40. I had a thyroidectomy three years ago, and for awhile I felt I was doing OK. Then, I got intractable hives which after many tests
    can’t be ascribed to any cause, hair loss, and always feeling cold. Doctors here won’t consider anything but Synthroid, and current endo won’t consider Cytomel. If I could find a source to buy natural thyroid, I would try it by myself.

    • Chronic uritcaria (hives) are more common than you would think with hypothyroidism. The best way to deal with them is taking an antihistamine every day, such as Claritin or Zyrtec. You may want to consider an allergy shot if those do not help. The key is taking it everyday

  41. I finally found a functional Dr here in MI that I like. I’ve tried3 others and decided to drive over an hour this time so far worth it. My lab numbers are doing great, got my antibodies from 489 to 67 using paleo and good supplements. I am seeing another endo soon for high cortisol but I’m sure it’s major anxiety and stress, hair loss has been horrible but lab numbers are good otherwise. Hopefully this endo has more sense. My PCP now thinks out of the box but lost about my cortisol.

  42. I started seeing my Endo about 5 years ago. The first change he made was to incorporate Armour into my existing dosages of levo and cytomel. With the addition of Armour, I began to feel better. I can’t really explain it just an overall feeling of healthiness. So after a bit, I asked him if it was possible just to take Armour by itself without the synthetics. He said that would be fine and he decided on a dosage. I was taking 170 mg of Levothyroxine and 10 mg of cytomel. He put me on the dosage of 60 mg of Armour. I went back to see him on my follow-up visit and told him that I felt there was a problem with my dosage because I was putting on weight. He told me that he would not use thyroid medicine as a diet drug. He did agree to up my dosage to 90 mg. Following this, I lost my insurance and had no way to return for a visit. I kept feeling more lethargic, fatigue, and continued putting on more weight. I also had lost my job and could not afford Armour so I researched other options of natural thyroid. I found Nature’s thyroid and it’s cost was about a third of armor. I contacted his office and ask for them to please change my prescription to Nature Thyroid but it would have to be in a bit higher dosage because they did not make a 90. They agreed and I began taking Nature Thyroid. unfortunately my symptoms continued, so I began to do some research. I came across a conversion chart for switching from synthetic thyroid to natural thyroid. When analyzing this chart, I found that the amount of thyroid I should be taking was 146.25 mg. This opened my eyes and made sense of how I”d been feeling. I emailed my endo a copy of the chart and explained that I felt my dosage was incorrect. According to this my dosage was only two-thirds of what it should have been taking and this had been going on for over a year now. I had a new job and great insurance so I went for a physical with my primary care physician. He did blood work of course and when I went to see him, the first thing he asked was if I’d been feeling pretty run down. I said could be worse with a little snicker but I knew why I was feeling this way. I showed him the chart and he went on to tell me that my TSH level was a 45. I won’t go into this any further because anyone that has thyroid issues knows this is a serious problem. The biggest problem was that I had my thyroid removed and did radioactive iodine to kill the rest of the tissue due to thyroid cancer. I also have Hashimoto’s. So, no matter how hard the pituitary pushed for the thyroid to produce more there was no tissue there to do so. The condition had gotten so bad that when I did go for my blood work they took my temperature twice because of COVID of course and I found this strange. Out of curiosity, I asked the the office person what my temperature was. She stated my temperature was 94.8. My thyroid had been so low for so long and my body was responding best slowing everything including dropping my temperature to near hypothermic degrees. With is my research, I had found a condition called myxedema coma. This is a very serious condition and it’s brought on by untreated hypothyroidism. From what I had found, only about 50% of people who this hair’s to will survive. As you can imagine, my frustration was through the roof. I was angry. How could anyone do this? The problem with my endo is he is more concerned about how you feel than what blood work would tell you. At first I thought this was a great concept because of course we all want to feel great but in the end it didn’t really matter how I felt. He had not done blood work in a very long time and when I addressed the issue with him about feeling like my dosage was incorrect I was accused of wanting to use it as a diet drug. So I armed myself with a lot of information from mostly Medical abstracts. My primary care physician had changed my thyroid dosage to the 146.25 mg of Nature Thyroid when I had my physical. I made an appointment with my endo and in the meantime, all natural desecrated thyroid had been recalled. So I went to the appointment with my endo armed with all the knowledge that I had gained. I had decided that I wanted to try Tirosint since this was pure T4 without any fillers. I had found the calculation for people who have no thyroid after thyroidectomy and radioactive iodine based on their weight. The calculation showed that I should be on 195 mg of T4. I went into his office and as Dr Westin Child’s states he was not happy. I then was accused of not taking my thyroid as I’m supposed to causing such a high TSH. I was told that the issue with my weight was due to my diet. I was told that the thermometers that they used to take your temperature on your head are not accurate. Yet, I found this funny since his own nurse had used that method to take my temperature when I entered his office. He stated that he prescribes Armour and knows nothing of this Nature Thyroid that I was taking. Which didn’t matter since Armour was recalled also. I found this very odd since they are all versions of the same medication desiccated Pig thyroid. In the end, I was told that if I’m going to manage my own care, he refused to be my doctor any longer. He, also, knowing that my thyroid medication has been recalled did not prescribe me a different medication. He ordered blood work and told me to go see my primary care physician. I had asked for reverse T3 but instead there pot in for thyroid uptake. I was glad that he did not want to be my doctor any longer because obviously he was not very good at it. He wanted to hear nothing of what was incorrect instead he blamed everything on me. The funny thing is thar the truth is on my side because I can go to my pharmacy and get a printout of when I had my prescriptions refilled and I can go to the lab that he uses and pull all my lab work I’ve had in the last five years since I’ve seen him to prove that no blood work was done in a very long time and that I was taking my thyroid as directed. Its just mostly disheartening to me to have all of this blamed on me when there is clear evidence of his medicinal negligence. Every doctor knows you cannot dose thyroid without looking at where the blood work levels are. Yet he found this not to be important. Thank you Dr Westin Child’s for such a great article and it is very very true. I am taking the medication I requested but I’m not sure that I’m feeling that much better. My primary care physician only looks at TSH. He is not a good source for thyroid care. Funny thing is, my blood work is showing that I have no autoimmune any longer but my thyroglobulin is a 59, when it should be 0. We are both very concerned that my thyroid cancer has returned and may have metastasized at this point. I’m trying to find a doctor around here who is competent but that’s very difficult. I don’t want to go down this road again especially if my cancer has returned. I need someone who is very well-versed in this. Thank you all for listening and I hope that this helps others out there so they don’t end up in the same situation I am. I have great concerns of having reverse T3 issues that no one will test for or metabolic syndrome or any other number of issues that can come out of having a thyroid that is undertreated for so long. I am a obese for the first time in my life. I am 100 pounds heavier than I’ve ever been in my life. Even when pregnant, I did not weigh this much. The change in thyroid dosage does not seem to helping in taking any of the excess weight off. I think what angered me the most was that now I have to worry about diabetes, joint problems, heart problems, and all of the things that come along with obesity. I eat a very good diet. I love fresh fruits. I love a good salad. I never deserved this but this is my future at this point.

  43. Everything mention, I have experienced first hand! I was diagnosed with hyperthyroidism and Graves, in 2015. Here it is 5 years later, 4 endocrinologist later, and none of the physicians at my family doctor’s office will do anything different. Every time I would see a new endocrinologist, one of the first things they mention is radioactive iodine or surgery. They rush me out the door instead of listening to anything I have to say. The Endocrinologist, I’m seeing now, has told I can diet and exercise but it’s not going to help. Food doesn’t play a role. Your levels are in range, therefore your anxiety isn’t being caused from your thyroid. I haven’t gotten so bad in my mental state that I’m causing them mental harm. I’m either frustrated to the max, crying, or so exhausted that I sleep days away. This isn’t fair to my four children and fiancé. I’m currently in search of a more open-minded Dr that takes insurance, because I just cannot live much longer like this!

    It makes me happy to see an educated physician coming out about the truth! Thank you for that!

  44. Unfortunately that was exactly my experience with my Endo. I still see him to get my labs done. In the beginning he laughed every time I gave him a list of what I want tested. Mostly because I haven’t been able to get my hairloss under control. I’ve had to educate myself as well as advocate for myself. It’s been two years since my first visit. 1 and 1/2 years since my diagnosis of Hashimotos.
    I’m on a low dose Armour (had to fight for that) after a year on Levothyroxine. My symptoms (other than hairloss) were all mostly helped by going gluten/dairy/egg/refined oils & sugar free. He thought that was just insane. I now see an integrative doctor but have my labs done through my insurance with the Endo.
    Still looking for a solution to my intermittent hair loss. I’ve most likely lost 60% volume. If I go through another prolonged shedding period, I will no longer be able to hide it. Being a very young and active single 49 year old woman it’s just killing me. I know other people have it worse so I try to keep it in perspective. ☹️

  45. What if you had your thyroid removed? What tests should be ordered? What kind of numbers should a person have? I have been on levothyroxine since my thyroidectomy 4 1/2 years ago. Gradual weight gain. Finally lost about 15 pounds 2 years ago, dosage was dropped, gained the weight back. My primary has expressed willingness to treat my thyroid, so what should I ask her?

  46. My family doctor (who is no longer my doctor) sent me to an endocrinologist who was supposed to be “the best”. This endo, who looked to be less than 100 pounds, just blurted out, “you’re fat and you need to lose weight!” I am less than 50 pounds overweight but can’t seem to lose it. I have Hashimoto’s and was at the beginning of my diagnosis. I found your website and thought she would listen to me as her patient. I tried talking to her about various testing and even mentioned adrenal exhaustion and she just rolled her eyes. A young intern was shadowing her and she loudly told him that they would discuss me later. I was so appalled! Not only did she leave me waiting for an hour in a waiting room that I wasn’t supposed to be in but she talked loudly about me to her staff and the receptionist. I cancelled my future appointment with her and never went back. She is young and ignorant and is unfortunately leading others down her path of ignorance. I can’t seem to find anyone that I trust now. I am at a loss.

  47. Hello, yes I experienced two years trying to get an internist to help me- went through 3 of them as they would not order the tests I asked for having done much reading about thyroid function and knowing this was more than hypothyroidism. I finally made appts with endocrinologist and separately with a functional medicine physician; of course waited another 4 months to get in.
    Actually saw female nurse practitioner first in endo’s office. She was fantastic, ordered lab work to confirm her suspicion I had Hashinoto’s,
    I had already started an AIP diet and was feeling better, but this put me on the road to recovery, added Cytomel to the Synthroid and it has made a difference.
    I agree the endocrinologist himself did not seem too interested in exploring further other than to continue to check TSH q 6 months… functional medicine also diagnosed me with SIBO and this MD takes the AI issues very seriously, so got even more help there, including suggestions to reduce stress/inflammation and more dietary recommendations.
    I relate to the woman who wrote she wanted to give up. It is hard to keep going when all one feels terrible all the time and HAS to sleep all the time.
    Being armed with research and information (much of it learned via Instagram posts and recommendations there) made the difference. One must be advocate for self which is not always possible. Good luck to all those out there looking for answers,

  48. You are describing my experience almost exactly. After 10 years on levothyroxine (diagnosed at 50) I started going downhill, particularly noticing a serious decrease in brain function. I did my own research, asked my GP a few questions which immediately put her out of her depth and she referred me to local NHS endo. She made me go through many hoops before allowing me 10mcg liothyronine (T3). This had an immediate beneficial effect but this effect was not accepted – endo kept repeating that there was no scientific proof that T3 treatment had any effect, and if it was invented today it would never get a licence. I said I was very sorry for her, having to do a job that meant she could never actually listen to her patients, but only watch her computer screen (she had a student by her side while I said this). Eventually I found a wonderful private doctor in Integrated Medicine in Bristol, a specialist in bio-identical hormones just as you say. She increased my T3 dosage and has me on combination T4/T3 therapy (100/30mcg) and I feel much better generally and mentally. EXCEPT that I have a lung condition that has been slowly developing and worsening since I was first treated with levothyroxine. I have a permanent cough, with lots of congestion, which has resulted in blood blisters in my lungs, which occasionally burst. I am now finding there are times that I don’t have enough lung power to have a conversation. I do wonder if this lung damage could have something to do with the levothyroxine?

    • Vivienne did you find the cause of your lung issues since I went on levo I have terrible issues with my lungs and many other issues as well skin throat joints weakness fatigue

  49. What you describe has been my experience with G.P.s and with my Endocrinologist. One test TSH , no need for further thyroid tests. continue on Levothyroxine 100mgs . My TSH was 1.4 he ordered a Total T-4 the day of the appointment it was 9.7 Two months later I went to my Endo MD and all he ordered was Parathyroid level 8.50which has been High range twice in the two years ,it was 7.37 I sought him out for consult . He said no further testing is necessary. . Both Doctors said in the Medical Record that they observed my neck /”normal vision inspection” , I had on a high collar top that when I sit down it goes up to my chin. There is no way either the G.P or Endo MD could have observed or seen my thyroid unless they have xray vision. I can feel small hard around the larynx and two small softer lower where I think that is my thyroid gland. The worst part of that visit with the G.P. he is not my regular G.P. mine had an emergency . I did not consent to seeing him I was told I would after she took my ins and drivers license cards . He called my argumentative. I said to him this visit is not going well doctor I am leaving . And He ran out of the room.leaving me sitting there…..When I got the medical record . He had escalated the visit to a level 5 to F22 Delusional disorder he said reason was she believes t”he gov. is poisoning the water supply that made my bones weak” . I never said that in those words ……I am much more educated on Water Fluoridation and the what is does chemically to the thyroid, Bones and teeth. I am a antivist x 12 years in Michigan speaking in cities and to city managers and their water depts about how systemically treating the city population with fluoride , the harm it is doing t peoples bodies.
    I have not drank tap water in decades and I buy and drink Spring water or R.O. water He continues to use every psychological wording he could come up with. That is the on my facesheet and in a narrative . He refuses to put in an addendum. My insurance paid him. So I was told to put in a written statement to refute it and I sought out many experts and they all told me report the doctor to the AMA and in Michigan it is the Licensing board . And see if they will investigate it . No way he could make that serious diagnose of me in 7 minutes time, that takes 5-6 hour visits with a psychologist and also testing verbally and physically. I have also cut my dose in half and within a free days I felt more like myself. I was sleeping better to , lately not so much this attack I have had has caused me much stress. I have an appointment with a two other experts . I wish you would take virtual appts . I;ll survive this but it has been a good place to be in during this covid two year lockdown.

    • Hi Janice,

      I probably wouldn’t waste your time with that doctor and just move on to another one that is more likely to help. We only have a limited amount of time in life so it often makes sense to spend it doing things that will help us feel happier and more fulfilled. I have created this resource which outlines several ways to find a more competent thyroid doctor that I would recommend checking out: https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/

  50. Been gaining a huge amount of wait despite being in a calorie deficit, Ive gaine 25 lbs in 5 months, my pcp prescribed phentermine and did nothing, kept gaining weight, I had to convince my gyno to give me a referral for an Endo. Saw him yesterday, left the office crying… I told him about the gain weight, being cold all the time chronic constipation and anemia, swollen legs, and so many other symptoms.. He did not order any tests, and gave me a prescription for trulicity. I asked him what is going to happen after I stop the medication and start gaining all the weight back, because the root of my problem was not being addressed, he told me while I am on the medication I should change my eating habits…. like what?? did not you listen to me telling you I am in a calorie deficit and exercising???? I feel so discouraged and mad, I do not know what to do anymore

  51. years ago, a friend of mine noticed the backs of my hands were consistently bruised and told me that’s the sign of thyroid issues i went to dr he did tests which ones I’m not sure, but he said everything was normal. Fast forward ten years after gaining heavy weight being tired all the time test after test still same symptoms even worse at time mis diagnosed with other things like fibro nothing helps, i went to er here a couple of weeks ago with migraine headache and he saw my face all swollen ,now i have been diagnosed with ra and am on meds for that plus antidepressants and Lyrica for my nerve pain and fibro that seems to have mysteriously appeared again i have lymphedema and have been having problems with my veins and had some ablations done still tired brain fog hair loss now i thought was the lymphedema in my face could be thyroid according to er dr he ran t4 test and tsh reflexive the reflexive came back below normal I have to go in and have more blood test which will probably come back normal i know a few years ago my dr found a couple of nodes on my thyroid but i couldn’t get them taken care of in office as I am allergic to lidocaine and they have to put me out and I had no driver , now I am worried about all this swelling that doesn’t seem like normal lymphedema that the drs keep pushing aside who do I see or go to what kind of dr can do the right tests to fix this ?

  52. Hello,
    I requested that my GP have my blood work done to test my thyroid.
    My results were as follows: Free T4 0.60
    Free T3 2.09
    TSH <0.02

    Everything is BELOW Normal, yet he has not offered any solutions.
    I am 60+ years of age.

  53. I struggled over 20 years to get my hypothyroidism in check with my Internal Medicine doctor. At 60, I’d had enough & requested an endo referral. After initial consult & testing, turns out I had been overprescribed. Within a few months on my new dose, I felt better & levels have remained in check. In addition, my endo discusses other aspects of my life to assist in suggesting things to change for better overall quality of life. At 65, I’m committed to my endocrinologist.

    • Hi Barb,

      Glad you found one that is willing to work with you. There are definitely some good ones out there.

  54. my tsh 2.4 ftt3 28 ft4 0.92 antibodies 1.5 antithyroslobulin 45 been on depreesion and anxity pills for 30 years nothing works tired nervise fell like crap evrey day could this be thyrid problems thanks

  55. Amen to everything stated in this article. I suffered from Graves disease, and hypothyroidism after RAI. In 15 years, have seen about 7 Endocrinologists. None were helpful. They only prescribed Synthroid. My weight was constantly increasing. In 2021, I finally found an OB/GYN that specializes in hormones; Dr. Dominique Smith, Lithonia, Georgia. She ordered a complete thyroid panel. She also ordered a complete hormone panel, blood count, and everything else imaginable. I had never seen this quality of care. My tests revealed that I had low testosterone, along with hypothyroidism. I was prescribed Armour thyroid, BIO-te hormone pellets, and BIO-te DIM supplement. I feel like a new human being.

  56. Hello,
    Doctors don’t listen to you which is extremely frustrating especially since I was a therapist, where listening was an integral part of my job when trying to help people. They might know medicine but give or take I know my body which is why working together is so important.

    The t4 test says normal but I most certainly don’t feel normal on 50 mg of Levothyroxine and when I went to 75 mg, cognitively I felt things just weren’t right which is why I went back to 50 mg until I can figure out what to do next.
    I have gained weight and haven’t lost any since I’ve changed my diet, have fatigue and aren’t motivated which wasn’t the case before I started taking this medication, have sensitivity to heat, joint pain and overall muscle aches and in the morning I wake up where my hands are somewhat swollen. The only thing that has gotten better since I’ve been on this medication is less hair loss mostly thinning of hair and my skin isn’t as dry and itchy. Other than that it’s like being on a roller coaster which I somehow need to get off of because it’s causing me to be stressed where all the symptoms increase and at times depressed over the whole thing.

    I started with a family physician but he’s more what I call a prescriber and just talks with me while typing what I’m saying and than afterwards telling me what he thinks. Because of this I decided to go to an Endo where I have to wait two months to see in the hopes of finding better help but having negative experiences with doctors and reading what you said I’ll just have to hope for the best.

    Levothyroxine isn’t right I just have to figure out what is. I was thinking of trying tirosint especially since its such a pure medication which might suit me better being I believe I am sensitive to dyes.

    The only thing I can think of is stating your case and then letting them know what you want in the hopes they will listen and make the necessary changes especially when there are choices in the medications you can take. Kind of like you would if you were a lawyer. I feel you try the different medications and see which one works the best and before doing this request the testing you suggested. Other than this I have nothing.

    From what I’ve told you, do you have any ideas as to how to deal with my situation which has changed my life and not in a positive way.

  57. Good morning,
    What would you recommend for B/L thyroid nodules, solid, and one is taller than wider, which seems to be more worrisome. I only discovered them because I am feeling an uncomfortable ‘fullness’ in that area, so my pcp ordered an US.

  58. I been reading a lot of your information, part of me is just a little afraid and I don’t know really why I’m. I was hyper and then I went to hypothyroidism after they gave me radiation treatments on my thyroid the only really problem I have is the weight loss plus I’m do not have a lot Energy and I get you what you say about specialist because I’ve been going for 20 years and asking the same thing over and over with no answer, so I told my doctor I want to try tirosint and she said okay . I feel good but I been getting some hot flashes so I hope by taking maca will help.

  59. My general doctor thinks I have Central Thyroidism. My FT4 is low and TSH is very low (due to Dessicated Thyroid medication?). My doctor wants me to see an Endochrinologist. I’ve tried making an appointment with two different ones, and they won’t see me because I’m on Dessicated Thryoid. What is up with that???

    • Hi Karen,

      I would say that’s very strange behavior on the part of endocrinologists. Even if they don’t agree with using NDT, they are still usually not against seeing someone who is taking it. They may try to get them to switch, but that’s usually the extent of it.

      • Just made an appointment with someone who’ll see me. I just won’t mention Amour Thryoid until I need to. I’ve had two doctors suspect I have CT, but I feel fine.

  60. My former endocrinologist did nothing for me. The only thing she said she would do was order the blood tests (TSH, TGAB, TPO) and help the family doctor order the thyroxine and change the doses if required. Then she discharged me because I followed all the doctors’ advice about getting another opinion. I went to a dermatologist (to rule out scleroderma because my fingernails all split from swelling) she told me nothing she sees leads her to believe I have that disease, but maybe it’s rheumatoid arthritis and go see a specialist in that disease. So I did. He told me that nothing he sees leads him to believe I have RA and that whatever I was doing (AIP, dietary changes, removal of sugar) was clearly working because my antibodies (TGAB) were coming down. When my endo found out about “all of these doctors” she said “well you don’t need me with all of these other doctors you are going to see so I am discharging you”. Based on her actions I thought to myself that’s a good idea. So I manage these days with my gyne (who did my last surgery for endometriosis in 2016) and is the only doctor who seems to care if I live or die. I also found this site to be the most informative of any site on the internet. I have recently got the Hashimoto’s bundle but they seem to stimulate and I can’t sleep. I tried reducing to daily but still couldn’t sleep so I will try alternating them. I have tried levothyroxine and after 4 weeks got symptoms of over treatment and stopped. My resting HR was in the 90s and when up moving around went up to 130s at the highest it was 137. Once I stopped the med it took 6 weeks to get out of my system and then my HR returned to my normal of in the 70s. I am glad we can share with each other because some of the doctors out there are just crap.

  61. I 10000% agree with your article! Diagnosed with metastatic thyroid cancer at 21yrs old, I am 46 now. I went through 7 Endocrinologist and it was all the same. We need your TSH highly suppressed to prevent Thyroid cancer reocurrance. They didn’t address medication induced hyperthyroid symptoms or anything else. I get more thorough care from my GP because they know me and actually listen. The Endos seem to be more diabetic driven, always wanting to check for diabetes, which I did and do not have.

    • Hi Marie,

      Your statement about diabetes is spot on. You would think that an endocrinologist would be the best option for hormone imbalances but that is rarely the case as they primarily focus on diabetes. Good luck getting an endocrinologist to balance estrogen, progesterone, testosterone, or thyroid correctly.

  62. HELP! I have been a T2 diabetic on insulin for many years, and was convinced I was hypothyroid. I kept asking my doctors to check, but those that did text did the usual TSH, t3 and 54 and said I had no thyroid dysfunction. So I started to do my own research, over a number of years and getting nowhere with mainstream practitioners, and finally found a thyroid clinic treating patients with Hashimoto’s. I had a raft of tests done – and I have Hashimoto’s. Given my medical history, the doctor believes I have had Hashi for at least 10 years. I am now being treated with Armor. BUT – I have one doctor treating my diabetes, one treating my Hashimoto’s. They both have different theories. I am now on a raft of medications prescribed by three different doctors, and there is not one person who will objectively assess my meds to see if they clash of counteract each other. What can I do????


Leave a Comment

Your Cart
Your cart is emptyReturn to Shop
Calculate Shipping