Why is Weight Loss so Difficult After Thyroid Removal? | Dr. Westin Childs

Why is Weight Loss so Difficult After Thyroid Removal?

Gain 20 Pounds After Thyroid Removal? 

I mean it, it's a serious question. 

Have you gained 20 pounds or more after your thyroid has been removed? 

If so, you are not alone. 

In fact, women, on average, gain around 20 pounds after they get their thyroid removed according to several studies (1) which looked into the matter. 

The question is...

Why does this happen and is there anything that you can do about it?

You already know that your endocrinologist or thyroid doctor is probably not even concerned about your weight gain. 

They probably already attributed your weight gain to your age or some other issue even though the weight gain started RIGHT after your thyroid was removed. 

And this is pretty standard, unfortunately. 

The good news is that there is a REASON for this weight gain and that something CAN be done about it. 

The bad news is that it's often very difficult to lose weight once your thyroid has been removed and that's exactly what we are going to discuss now. 

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4 Reasons Patients without a Thyroid Struggle with Weight Gain

You should be aware that each patient is a little bit different. 

I've seen stories of people who gain weight immediately after their thyroid has been removed and I've seen people were fine for a few years and then suddenly experienced rapid weight gain. 

Others still experience a slow weight gain over many years. 

Whatever flavor of weight gain that you are struggling with once your thyroid has been removed will most likely stem down to these 4 reasons. 

You should be aware of these reasons because the chances are high that your doctor will most likely ignore them. 

It will be up to you to advocate for yourself! 

#1. Your Thyroid Regulates your Metabolism (about 60%)

The PRIMARY reason that women gain weight once their thyroid has been removed is actually quite simple. 

Your thyroid gland controls and regulates the majority of your metabolism

You know, your metabolism, the same thing that controls how many calories you burn on a day to day basis which in turn regulates your appetite. 

The thyroid gland is responsible for controlling about 60% of your entire metabolism (2), give or take a few percentage points based on the person. 

We know this because of clinical studies which have attempted to estimate exactly how much your thyroid contributes to body weight. 

And this shouldn't come as a surprise. 

Why?

Because one of the biggest complaints of people with a low thyroid is WEIGHT GAIN. In fact, it's the #1 most endorsed symptom by women with low thyroid function

Isn't it ironic that women tend to gain weight immediately after their thyroid has been removed knowing that your thyroid controls a huge percentage of your weight? 

I say ironic because your doctor will try to play it off like your weight gain is due to some other cause when the most obvious cause seems to be overlooked. 

The changes that occur to thyroid hormone regulation in your body once your thyroid has been removed are also responsible for why it is so difficult to obtain a regular weight after. 

It's going to be very difficult to manage your weight if the very thing which regulates it is compromised and not back at 100%. 

If you've gained weight AFTER your thyroid has been removed the first place you should look at is your thyroid medication dose

Which brings me to the next topic...

#2. Most thyroid patients are UNDERtreated with thyroid medication

The majority of patients who have had their thyroid removed struggle because they are being undertreated. 

What do I mean?

I'm talking specifically about your thyroid medication dose. 

The prescription medication that you were given once your thyroid was removed. 

EVERYONE who has their thyroid removed will need to be on thyroid medication for the rest of their life. 

It's not an option because thyroid hormone is required to sustain critical functions in the body. 

This is not up for debate. 

But what is up for debate is how MUCH of that prescription thyroid medication you are taking (and what type of medication you are taking). 

This is referred to as your dose. 

And most thyroid patients, including those without a thyroid, are taking a dose which is too small for their body. 

This occurs frequently because most doctors dose based on a test known as the TSH

In addition, they almost always use the weakest form of thyroid medication in levothyroxine and Synthroid

These two reasons account for why most patients without a thyroid are not receiving the right dose. 

natural thyroid supplements version 2

And, obviously, if your dose is inadequate then you will have trouble with your weight. 

Remember when I said that your thyroid controls and regulates your metabolism?

Once your thyroid has been removed you are now counting on your prescription medication to take its place. 

And if you are not replacing it adequately you will continually gain weight and/or have difficultly losing weight (usually both). 

#3. Most thyroidectomy patients are not on T3 thyroid hormone

Are you currently taking levothyroxine or Synthroid?

If so, you are like most other thyroid patients. 

These medications are the go-to medications for most endocrinologists and other thyroid doctors

But there's one big problem:

Your thyroid gland, when it's functioning in your body, produces TWO types of hormones. 

T4 and T3

But when your thyroid gets removed your doctor almost always will put you on only ONE type of thyroid hormone. 

T4. 

The medications I mentioned above, levothyroxine and Synthroid, contain only T4 thyroid hormone

We know that this is a problem because studies have shown that patients who use only T4 medications like levothyroxine never obtain normal healthy free T3 levels after thyroid surgery

How can you consider someone to be adequately treated if you do not at least try to mimic the same hormone production that a healthy thyroid gland produces?

And yet this is exactly what most endocrinologists do. 

The healthy thyroid gland produces roughly 80% T4 and 20% T3 thyroid hormone (3). 

But when your thyroid gets removed your doctor puts you on 100% T4 thyroid hormone and neglects to add in the T3. 

This is a big problem because T3 thyroid hormone is 3-4 times more powerful than T4 thyroid hormone. 

Once your thyroid has been removed you are losing the benefit of 20% of the strongest thyroid hormone in your body and replacing it with an extra 20% of a weaker version. 

With this change to thyroid hormone metabolism, it's no wonder that thyroidectomy patients struggle with weight gain. 

#4. An undertreated thyroid leads to other hormone imbalances

And lastly, another reason that women without a thyroid suffer from weight loss resistance is caused by other hormone imbalances. 

While your thyroid definitely contributes to your overall metabolism, there are other hormones which are regulated by your thyroid that contribute to your weight in other ways. 

For instance, the fat hormone leptin is involved in regulating appetite and metabolism and it is intertwined with thyroid function

If you have your thyroid removed and you do not replace your thyroid levels adequately, it sets the stage for the development of a condition known as leptin resistance

This condition is created by the environment of low thyroid hormone but it is not FIXED by simply taking thyroid medication. 

And leptin isn't the only hormone which is, in part, regulated by your thyroid. 

Another fat storing hormone which is, in part, regulated by thyroid hormone is insulin. 

Women without a thyroid tend to develop insulin resistance and leptin resistance over time if their thyroid is not treated adequately. 

These hormone imbalances make weight loss even more difficult and MUST be addressed if you want to lose weight long term. 

Is Weight Loss Impossible After Thyroidectomy?

What does all of this information mean for you if you don't have a thyroid?

Will it ever be possible to lose weight and get back to a normal healthy weight?

The answer is yes. 

But you should be aware that your weight loss journey will be much slower than people who have a thyroid. 

That's just the unfortunate situation that you are now in once your thyroid is gone. 

I usually tell people without a thyroid to expect weight loss at about a rate of 50% compared to people with a thyroid. 

They will also have to try about twice as hard as the average person. 

Yes, it's slow, and yes it's hard, but it's no impossible. 

Another thing that you should know is that your thyroid medication is going to be a very important part of your weight loss journey. 

Because your thyroid can no longer produce thyroid hormone on its own, you will need to pay close attention to what type of thyroid medication you are using and how much you are using. 

Your goal here should be to try and mimic whatever production of thyroid hormone your thyroid was producing BEFORE it was taken out. 

This will almost always include a combination of T4 and T3. 

If you aren't familiar with T3 thyroid medications then I would recommend you look at both Cytomel and liothyronine

These are prescription medications which contain the T3 thyroid hormone and can be added to your existing dose of levothyroxine or Synthroid. 

You can also get T3 thyroid hormone from other thyroid medications such as Armour thyroid or other formulations of NDT

Either source will work but make sure you do NOT neglect this step!

Do Supplements, Diet, and other therapies Work? 

Assuming your thyroid medication has been optimized your next step will be to get aggressive with additional therapies. 

This means you will absolutely need to look directly at the types of foods that you are eating, the types of supplements you are taking, and how much you are exercising. 

Remember: 

You will need to work twice as hard to lose your weight compared to someone who has a thyroid. 

This usually means that having cheat days from your healthy diet, at least in the beginning, is not really an option for you. 

It certainly isn't fair but it's better to know that this is the case than to not. 

When I talk about diet I'm really talking about healthy eating. 

You want to avoid any type of diet which is considered a "calorie restricted diet" as these types of diets will make thyroid function worse. 

Instead, focus on diets which include healthy whole foods such as the paleo diet, whole30, or any other version such as that. 

I would also recommend that you look into supplements designed to help thyroid hormone do its job, supplements that can help with weight loss directly, and supplements which help manage food cravings. 

These should ALL be done in conjunction with adjusting your diet (as mentioned above). 

Do not make the mistake thinking that taking a couple of supplements will help you lose weight because that is not the case. 

Your Turn

While weight loss can be very difficult and frustrating once your thyroid has been removed it is definitely not impossible. 

I have personally helped many patients without a thyroid lose weight and, at the very least, start to feel like themselves again. 

But I am speaking from experience when I say that the weight loss they experience is much slower than compared to people with a thyroid. 

Understanding this phenomenon will help you manage your expectations and prevent you from getting discouraged when you start your weight loss journey. 

Now I want to hear from you:

Did you gain weight once your thyroid was removed?

If so, how much did you gain?

Are you trying to lose weight right now?

What types of therapies have you tried? What has worked? What hasn't?

Leave your questions and comments below! 

References (Click to Expand)

4 reasons why it's so hard to lose weight after thyroid removal

Dr. Westin Childs

About Dr. Westin Childs

Hey! I'm Westin Childs D.O. (former Osteopathic Physician). I don't practice medicine anymore and instead specialize in helping people like YOU who have thyroid problems, hormone imbalances, and weight loss resistance. I love to write and share what I've learned over the years. I also happen to formulate the best supplements on the market (well, at least in my opinion!) and I'm proud to say that over 45,000+ people have used them over the last 4.5 years. You can read more about my own personal health journey and why I am so passionate about what I do here.

32 thoughts on “Why is Weight Loss so Difficult After Thyroid Removal?”

  1. I had my thyroid out in Oct 2016. Since then I have gained at least 40 lbs. 8 months after my surgery my TSH was 29. My worthless doctor only did labs once between that time. I didn’t know better. But I knew not being able to get out of bed was a problem…I have struggled to get my levels in “normal” range. I switched to Armour but no matter how high the dose my body was just not absorbing it. It was weird. I’m back on levothyroxine and finally after 3.5 years it’s getting better. But in the meantime I have put on all this weight, more than ever in my whole life. And I haven’t changed my eating habits. I’m hoping to see some others suggestions of what they have done to help the situation.

    Reply
    • I had a doctor who didn’t believe in labs for dosing thyroid meds. He based it on how you feel. But when I went in and told him something is wrong cuz I’m gaining weight rapidly (which want normal), he did exactly what Dr. Childs said he would. He blamed it on my eating habits. I’m keeping this short or I’ll we’ve up going off on a tangent.

      Moral: BP bouncing around 90/60, temperature in middle of July 94.8 (and i live in the desert), weight gain 100 pounds, heart rate 20-30 beats below my norm, labs drawn for physical TSH 59 (and yes that is really 59, not 5.9), began having narcoleptic episodes (falling asleep without knowing i was until I woke and realized unaccountable time had passed.

      I was only receiving about 60 to 65% of what my body required at minimum. This was my level of meds for over a year. I have had thyroidectomy and high dose RAI. The amount of damage my body has endured from his gross negligence is yet to be completely discovered. My cholesterol was high for the first time in my life. The weight is not coming off at all. Doctors here do not like being told how to do their job and could care less if you spent endless hours researching and learning all you can.

      I wish you the best and hope you lose what makes you feel comfortable. I feel like I’m stuck in a Halloween costume that I cannot get off no matter where

      Reply
  2. You hit the nail on the damn head, Dr. Childs. Thank you for this post. I’m sorta fired up right now because I have spent the last 6 weeks reading every blog post and studying my tail off to try and get to the bottom of why I feel so awful and have gone from 130 lbs to 180. I had the TT 6 years ago and was fine for 2 years. Then BOOM. I blew up 30 lbs in 2 months. The rest of the gain has been slowly over time.

    I’ve been taking NDT. I’ve been working with not just one but 3 of “the best” functional MD’s in LA, whom I trusted to take care of my lack-of-a-thyroid condition. I’ve been eating 80-90% paleo for 5 years, I work out, get 10k steps, do power yoga and strength training and HIIT. I keep my stress in check and I sleep 7-9 hours.

    And for the past 4 years the docs keep saying, “you’re doing everything right”. I’ve done all the GI tests, SIBO, mold, urine hormones, saliva tests, like all of it.

    Every single doc for the past 4 years has said its insulin resistance. So finally, I bought myself a keto mojo meter and did the keto diet for 3.5 weeks. I completely reversed any sign of insulin resistance in my labs — and gained 4 lbs in the process.

    Then finally after I insisted for the 50th time that my labs were not optimal, I need more medication. The doc added 10 mcg of Cytomel to my usual 4 grain NDT dose (which I still don’t think is right). Its been about 1.5 wee and I have lost 6 lbs. I think I should be on 6 grains, but 5 would be the right place to start. I don’t know why, I have always needed a really high dose.

    I am still very hypo tho. Body temp is between 95.6-96.8, I can’t keep my eyes open past 2 pm and I keep getting dumb blonde jokes because the brain fog is so bad. My BFF has started calling me Rose Nylund (from the golden girls). And I’m normally a sharp snappy person.

    I have been watching the past 4 years of my life blow by me because I am too tired to move. I can barely handle working anymore because I can’t do a full day. I’m so frustrated. because I know in my gut that it doesn’t have to be this way. If someone would just please pay attention.

    What does it take to get even a highly respected functional MDs to listen to a patient?

    TSH 0.06
    FT4 1.3
    FT3 3.2
    RT3 13
    SHBG 140 – H
    estrogen 287.7
    estradiol 30
    progesterone 5.2 (taking bio-identical pills 100mg)
    testosterone 29
    free testosterone 1.0

    IGF-1 137
    cortisol 10.7
    DHEA 121
    leptin 5.7
    Fast glucose 80
    insulin 5.8
    hb1ac 4.8
    HS CRP .9
    Ferritin 59
    I have hemochromatosis (2 genes) and both variants of MTHFR)

    Reply
  3. Just wanted to share something else I just learned about. I had never heard of this before. But in my most recent meeting with my doc, I asked, “so do I have a conversion problem?” He said, “no, it is not conversion exactly but your hormone receptors are not functioning properly”.

    So I google “Thyroid hormone receptor resistance” and mostly get medical studies which are hard for me to read with no medical training. Maybe a gene mutation? or maybe have other causes too.

    The issue I am having is that my dose of meds has always been high. Before I had a TT and weighed 130 lbs I was on 4 grains NDT.
    Now that I am 180, I really think my dose should be 5 grains, maybe even 6. Which sounds scary high. But the doctors are afraid to go higher.

    Doctors say: you have to be careful of your heart and osteoporosis. But I’ve have no hyper symptoms on really high doses, I have tested it. No palpitations or anything other than feeling great and like my old self.

    I read a number of studies and it seems that people with this resistance tend to do fine on higher doses and also tend to have very suppressed tsh, which I always do, no matter my dose.

    I’m wondering if you have any information / advisement to share on this topic?

    Reply
    • Same again with this issue. Dr
      Childs, are you please able to share your thoughts on Resistant to Thyroid Hormone (RTH)? Wondering if it could be related to mutations like Fini mentioned (I have the double MTHFR gene, too) and CYP2D6 rapid metaboliser gene, too. Feels like the thyroidectomy was a “Game Over” to living any sort of fucnctional life

      Reply
    • I just want to say, I know how you feel. I read about people who get palpitations and jittery from Cytomel. In have been on 25 mcg in the past and never felt that way. At least, your doctors do all those tests. I know about them but can’t get them to run them. The last doctor I tried in this town tested TSH, T4, Thyroglobulin& Thyroglobulin Antibodies. His nurse calls and says my T4 is hi (it was the higher end of normal) and he wants to lower it. I said no way. I am getting a second opinion. He didn’t even test my T3 to see if I was having conversion issues and I can’t find anyone to run an rT3 or any other informative test. I pay for my health care and carry an excellent plan so I have the problem that docs don’t want to learn, and they won’t test what they don’t know. I’m so desperate that I reached out to a doctor 4 hours from where I live.

      Reply
  4. I just started Armour 30mg this past April, recently increased to 60mg. I’ve noticed that I’ve started gaining weight more rapidly. 3 pounds a day. Can Armour cause weight gain?

    Reply
    • Hi Tiffany,

      I’ve seen people gain weight with just about every thyroid medication you can think of, including Armour thyroid. The cause of the weight gain is not always directly related to the thyroid medication, though.

      Reply
  5. Did you gain weight once your thyroid was removed? Yes

    If so, how much did you gain? 40+ lbs

    Are you trying to lose weight right now? Yes

    What types of therapies have you tried? What has worked? What hasn’t? Plant-based – no but also recently diagnosed with Crohns. Interment fasting 18/6 – not really. Juicing – yes. Feel the best. Try to do it every day but eat a clean meal each day. Did you gain weight once your thyroid was removed?
    Was on T3 compound only for over a yr. think this caused fatty liver issues. Body needs T4. Now on T3/T4 combination – 85/155. I walk 5 miles 3X week and do weights 1 to 2x a week

    If so, how much did you gain?

    Are you trying to lose weight right now?

    What types of therapies have you tried? What has worked? What hasn’t?

    Reply
  6. Yes I gained 40 lbs after TT.
    Keto helped me lose 15 but I haven’t been able to maintain the diet.
    I take T3 after begging doc but she only gives me the lowest dose. I still usually lose all energy by 2:00pm.
    I am 66 and 8 years post TT.
    No doctors care about how I feel physically or emotionally.

    Reply
  7. Hello. I had a thyroidectomy in 2006 and have steadily gained roughly 35-40 lbs since. I’ve tried several different changes to my diet and I exercise 5 days a week (not overdoing it) and haven’t lost a pound. Just keep gaining. I’ve tried different supplements for leptin resistance and vitamin deficiencies but that didn’t help. I’ve tried adding cytomel to the NDT I’m on and that didn’t help either.

    Reply
    • Jennifer, I lost my thyroid functions from 48-weeks of chemotherapy for hepatitis-c in 2001-2002. My doc tried synthroid and levothyroxine which both caused severe depression. I asked for Armour Thyroid Brand and am taking 75mg/daily on an empty stomach. I gained 100 lbs within a very short time and just the last three months am doing the Code Red Lifestyle and have lost 50 lbs. My weight loss is slow but I am hopeful. Try the CodeRed.com It’s $47/mo. But there’s a lot of support, Information and Education. The Code Red “Lifestyle” is: drink 1-gallon of water a day, weigh self every a.m./naked/sleep 7 or more hours a day. Eat meat, (any kind), all veggies, NO STARCHES (no legumes, potatoes, yams, rice, pasta, bread NO GRAINY whatsoever! No alcohol! No peanuts. Only pecans, walnuts, macadamias, cashews. Fruit are berries only! No pears, Apples, citrus. You eat when hungry, STOP when full. Two meals a day, NO SNACKING. And last meal by 6:30 p.m./latest. It’s a good program for me with no thyroid function!!

      Reply
  8. Did you gain weight once your thyroid was removed & If so, how much did you gain?

    – yes 30 lbs, I was an athlete In my early adulthood and remain active, currently 41 years old. I have weighed between 143-153 lbs my entire adult life with the exception of my two pregnancies both of which I topped out at 180 lbs. This year I had two surgeries, the first removing half of my thyroid and then a completion thyroidectomy due to pathology results. Within 6 weeks of the second surgery I weighed 176lbs.

    Are you trying to lose weight right now?
    – yes, I have been watching what I eat keeping my caloric balance for the day between 1000-1500 calories. I have read your blog posts about caloric restriction and reverse T3 production. I wanted to ask if this is caloric balance for example I consume 2000 cal in food and exercise 1000 calories, resulting in a caloric balance of 1000 calories or simply calories consumed. I always eat a minimum of 1200 calories but sometimes the calories expended in exercise have resulted in a caloric balance of between 800-1000 calories. Prior to having my thyroid removed I could easily eat 2500-3000 calories a day and not gain weight and would have easily dropped weight with my current level exercise and attention to diet, however I have struggled to lose even 5 lbs over the last 6 weeks.

    What types of therapies have you tried? What has worked? What hasn’t?

    I am on 125mg of synthroid daily which I take at 5:30 am and usually do not eat breakfast until 8:30-9:00.

    I eat Brazil nuts for selenium, supplement with greens and berries, omega 3, Vitamin D, B vitamin complex, Multi vitamin and iron (due to low ferritin on my last blood test). I also take vitamin B2, Magnesium and CoEnzyme 10 for migraines.

    I am on low dose birth control to control hormonal issues such as acne, irregular and excessively heavy cycles. I am also using seed cycling to try a natural method. As well as 75mg of Effexor for anxiety that was aggravated due to my diagnosis, specifically the inability to control the feeling that my heart is racing.

    I exercise regularly including yoga, cycling and running. Most days I expend 700 calories in exercise.

    My endocrinologist is switching my prescription to a synthroid/cytomel combination next week.

    Reply
  9. Hello, had a TT exactly one year ago, have gained 30lb. Asked dr to change over to NP,60 mg, then just had tsh checked, and is 22! AND just heard of the NP recall, and yes the mfg company was Acella for my meds. Diet includes mostly paleo and glutten free. And just like the previous notes from others, my dr trying to blame it on other stuff. Very frustrated.. NEVER weighed this much and photographs at daughters wedding from 2 weeks ago SHOW every ounce. I want to cry! According to your info, exercise will not help until my levels are optimal, What can i do?

    Reply
  10. Hi,
    I had a thyroidectomy 14 years ago. I have gained 50 pounds. Have also had alot of trouble with dizziness, fatigue, and depression. Have been to multiple doctors who will not increase my thyroid medications (I take synthroid and cytomel), but will always try to increase my depression medications. They blame everything on diet/exercise, but I do both! Very Frustrating! Your post has at least given me an answer!

    Reply
  11. Severely depressed from the 100 pound weight gain over 5 years. I am preparing for a gastric sleeve. I feel helpless. I am currently taking no thyroid but I continue to gain weight. I had my thyroid removed after thyroid storm Hyper.

    Reply
  12. I didn’t really gain any weight after my thyroidectomy, I actually lost weight. I was on Synthroid for 4 years which kept me very very I’ll. Finally found a primary care physician who believes in NDT. So I started on Nature Throid. I really lost the weight then without trying. It just melted off. After 4 years on Nature Throid it’s now recalled. I started on NP Thyroid & after one dose adjustment I feel good. I have gained 12 pounds over the last 14 months though but even though I have my walking routine & eat alot of organic vegetables & fruits, etc. I haven’t eaten as clean as I could have. But, I’ve started back being careful of what I’m eating & hoping to lose 15 pounds & drop back down to the pant size I was 14 months ago. Thyroid patients should not be fasting or doing low carb keto diets. We need healthy complex carbs each day. Too much & to vigorous exercise will have the opposite effect on trying to lose weight. I’m hoping NDT thyroid medication will never go away because it really positively changed my life for the better where I can function again. I still get easily fatigued though if I do to much so I have to be careful & work hard to stay balanced & manage stress.

    Reply
  13. Your post has confirmed my circumstances. I had half my thyroid removed 6 years ago and actually lost weight because I was so sick with Hashimoto’s prior to the surgery. I had a lot of energy afterwards. I have tried to maintain a gluten free diet as well. Any time I have tried to limit my calories, I have had very little success and felt very tired. Two pounds in 4 months of dieting is discouraging! I started gaining a pound here and there in the last year after my Dr. removed my cytomel prescription. My first endocrinologist mentioned she felt I had a conversion problem. My present endocrinologist does not want to prescribe cytomel. I have two brothers that were recently diagnosed with AFib and he feels cytomel is risky to my heart if AFib runs in the family. Any comment on that?

    Reply
    • Hi Mary,

      Even if it were to cause afib, which wouldn’t be likely, you could simply stop taking it and you’d be fine. A fib is typically caused by other issues such as weight gain and the issues that come along with it, so that’s far more concerning than the thyroid medication you’d be using to try and help reverse those conditions.

      Reply
  14. Total thyroidectomy 10 years ago, weight gain of about 20 kg since. No luck with diets, have tried low carb for the last 4 years and gained more weight. One endo told me I won’t lose weight because I am compromised – my age (60 now) and no thyroid. He told me that even if I lived on diet shakes I would not lose weight. Now I have found myself a good doctor who suggested time restricted eating (she said that is how she stays slim). So over the past 3 months I have eaten breakfast at 8am, dinner at middle of day and tea at 5 pm and nothing in between except water and black coffee. And I have lost 10kg. It is slow going but it is going and I am thrilled. It is an easy way of eating, I can do it without counting calories or following confusing rules and I can do this for life. If I want chocolate I eat it. If I’m meeting a friend for coffee and cake, I skip breakfast and still have the cake. I hope this helps others like me.

    Reply
  15. Prior to my thyroidectomy I was in the fitness field.

    I had a thyroidectomy in 2016 (cancer) I started out taking only T4 (Synthroid) and my mood swings and weight gain (20+ lbs) the first 2 months was terrible along with a collection of joint pains in my feet, calves, knees and hips that made walking or standing unbearable.

    The expected weight gain of 20 pounds is a freaking joke and each person’s reaction to surgery and treatment and prior health issues will certainly be a bigger prediction of the weight gain (menopause) +(thyroidectomy) + (improperly medicated)+ (prior health issues) = MASSIVE opportunity to gain more then over the 20 pounds these dummies predict!

    Anyway, I did bring the weight gain and mood swings up multiple times with my 1st Endo telling him that my weight gain won’t stop he suggested “weight loss shakes” he use to be a diet doctor THE HORROR of that comment made me realize I MADE A HUGE MISTAKE in doing this surgery and this Endo was a lunatic (I did fire him) but it was too late in my opinion he set the stage for the past 4 years that I just can’t seem to get off of now.

    I do take a combo of T4/T3 now for almost 2 years and Im far from being normal and honestly don’t think normal is a word I can ever use to describe me again.

    My recommendation: Pay attention to your labs and speak up if your not feeling right and fire any Endo that doesn’t meet your standards of care and please seek out 2nd and 3rd opinion before you consider doing a thyroidectomy even if they say “cancer” and remember all magic comes with a price.

    Reply
  16. Hello, I had a Thyroidectomy in 2003 due to cancer. Been on synthesis since. Was on Cytomel for a month after and doctor took me off said I didn’t need it. In all these years since my surgery they have never once tested my T3 levels, though I’ve asked many times. I’ve complained so many times about the weight gain and they always say the same thing ” eat less and exercise more”. I believe I’m definitely in the leptin resistance stage, anything over 500 calories sticks to my body. I walk 6-8 miles a day and do some weight resistance and no weight loss. It’s very frustrating when your endo doesn’t listen to you and how you feel. They believe they know how you feel.

    Reply
  17. TT in 2005. I’ve always had a minor weight problem, and losing my T-gland certainly didn’t help. I’ve been working w my functional med primary care physician to get my reverse-t3 down from 36 to 17 currently, w a target of 12. I am on Levoxyl 75mcg and 20 mg of Cytomel daily. I can lose weight for a period of time then it slows down and I end up going up to 220 pounds again.

    Fifteen years is a long time. It takes so much effort to convince myself that it’s my BODY and not ME that is fat. Ugh.

    Reply
  18. I knew about the importance of the thyroid gland in so many areas of health – metabolism, mood, regularity, skin condition, etc. – so I would not agree to a TT for my thyroid cancer until I knew I had an endocrinologist who would treat my post-surgical condition holistically. I also took time to do research, including looking at my DNA and seeing what genetic markers put me at risk for more problems after thyroid removal. I’m sooo glad I did!

    In addition to taking the gel form of levothyroxine (Tirosint) which is thought to be better absorbed, especially for those like me with digestive issues, I am also taking a split dose of Cytomel (T3) to help my energy levels. In addition, I eat a low carbohydrate diet, avoiding all refined sugars, and focus on eating mostly vegetables, meats, and nuts, in addition to a small amount of dairy. While such a diet may seem to strict, I have found it empowering. After two weeks or so, I lost the cravings I had for sweets. I have also focused on staying super hydrated with water, as I simply feel better, in addition to speed walking or jogging at least 4 miles a day. Lastly, I take supplements including pre and probiotics, and ones that address adrenal fatigue, vitamin B levels, and decrease peripheral thyroid resistance. It’s hard to know how much they help, but they are worth it for me, even for peace of mind.

    While weight gain and other thyroid issues after TT can be discouraging, I say use this season of your life to take back your power, not to be a victim. Yes, it’s not fair we have this condition and we need to step up more than the average person does, but we are strong and resilient! Consider everything you do to contribute to your wellness as an investment in yourself and as an inspiration to others. Because it is.

    Reply
  19. I’m days away from a TT due to Graves. I’ll put this info here, maybe it’ll help someone with Graves. For a long time before the Graves dx, I suffered with relentless GERD, IBS- gut issues, and chin acne. It wasn’t until after I’d already developed Graves that a doc tested me for h pylori, and lo and behold, I tested positive. Treated that, gut issues got better, and the chin acne disappeared as if by magic. The link to Graves? There are NIH studies that show that at a molecular level, h pylori exhibits characteristics that mimic thyroid tissue. It does so because it is an extremely well adapted bacterium whose survival strategy in the gut of the host is to manipulate the immune system into thinking that h pylori is part of the host… The immune system sometimes does mount a defense vs. it, and if the bacteria is not treated in time, the immune system can turn vs. the thyroid. This link astounded me. Again, you’re likely on this (great!) site because you already have AITD, so this info is not actionable: eradicating the h pylori after development of AITD does not resolve the immune aspect of the AITD, the auto-antibodies already exist, the AITD stands. However, it is testimony to the extraordinary importance of gut health to the wellbeing of the human body. Good luck to all and much health.

    Reply
    • Hi Gia,

      Great insight! I should point out that in some cases it is possible to see a dramatic improvement in autoimmune symptoms with the treatment of H. pylori. It is a known trigger of both Hashimoto’s and Graves’ and while the treatment doesn’t result in remission in all cases, it can still stand to improve the immune aspect in both conditions.

      Reply
  20. I needed to read this article. I am 4 years post total thyroidectomy. My weight gain has been gradual. I am up 30 lbs. I am on amour thyroid and the only supplements I take are iron, D3 and calcium. Dr Childs you are so right! The Dr attributed the weight gain to the aging process. I really feel like giving up! I have tried IF. That was successful for a while and then I plateaued and started gaining again. Ugh. The part where you said no cheat days I guess was for for me, lol. I need to be consistent! I love this article because it was specific to people without a thyroid. Thanks for this. Now I have to figure myself out and make a new plan.

    Reply

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